Linking up

If you are looking for specific information and don't find a link to it here, you can always ask on the List, or in the Chatroom or the Forum.
There's a good chance someone has already tracked down the information you are looking for, and will be happy to point you in the right direction.  

Clinical Trial Search:

NIH Clinical Trials - COPD

  Search for Open studies involving   COPD - A service of...
  U.S. National Institutes of Health

* When you get there, you can use the  Search for studies: box to limit the findings to your own area by entering COPD in quotation marks, followed by AND in capital letters, then by your city or state in quotation marks as in the examples below:

"COPD" AND "Canton"
(which now had 31 results)  or

"COPD" AND "Michigan"
(which now had 134 results)

When you shop on smile.amazon.com, and select COPD-Support, Inc. as your charitable organization, Amazon will donate 0.05% of the price of your eligible AmazonSmile purchases to support our programs. Thanks for your help!

  • Reference Links

    We can't keep all the links that could help, so we endevour to keep a list for you to start with. Below is what we believe will give you the best information to help you understand and manage COPD.

    click here to suggest a Link for us to consider


  •  box for links...(uncheck to show less)
    TOP TEN
    American Lung Association
    This is a must see site for anyone who wants to stay updated on what's happening in the field of respiratory care. This site includes ongoing political issues, respiratory care, from the caregiver level to the research stage. It also includes a link to all state respiratory organizations and ongoing projects within each state. It includes testing sites to determine your weak areas that you need to work on to manage your own care.
    National Heart Lung and Blood Institute (NHLBI)
    Learn more about COPD and how to live with it.
    National Emphysema Foundation
    This site is a great source of information; especially valuable are details involving definitions, symptoms, and medications. There is a section on breathing exercises and physical reconditioning as well as excellent guidelines for staying healthy.
    MedlinePlus
    From U.S. National Library of Medicine
    This is arguably the finest research web site for medical information on the internet.
    National Jewish Health
    From the National Jewish Medical and Research Center in Denver - a highly regarded source of information on pulmonary diseases.
    Be sure and check out their articles on Energy Management, and COPD and Anxiety.
    Canadian Lung Association
    Be sure and also check out BreathWorks downloads fact sheets and brochures about COPD.
    University of Wisconsin
    There are several good sites (WebMD among them) that get their information from HealthWise (information which you cannot access directly from HealthWise) - this is one of them, plus they have a great media gallery and no commercials.
    the COPD Foundation
    They're working for expanded services for COPD and improving the lives of individuals affected by COPD - also another great media gallery.
    Mount Sinai Hospital
    There is a lot of information on this site, with an emphasis on several in-depth and on-line articles. Interested in an extensive discussion concerning the history of Oxygen therapy? Similarly there is a full article concerning arterial blood gases.
    the Mayo Clinic
    Section has good content on chronic obstructive pulmonary disease.

    Medical links
    Alpha1 National Association
    Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic condition that is passed on by parents to their children through their genes and can cause serious liver disease in children and liver and/or lung disease in adults. With several thousand active members the Alpha1 National Association is the most influential Alpha1 organization in the world and provides many functions for those affected with this "brand" of lung disease.
    Alpha1 Foundation
    The Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection and a cure for Alpha-1.
    American Thoracic Society
    The physician's side of the American Lung Association with helpful patient information.
    National Lung Health Education Program (NLHEP)
    Headed by Dr.Thomas Petty (considered by many as the father of oxygen therapy) and his research associate, Louise Nett, RN, RCP, FAARC, who have been active for many years in the care of patients with COPD. They are now focusing on the early detection of COPD. It was started at the request of the National Institute for Health--Lung Division to spread the message that finding the disease early makes for better treatment. In addition to information concerning the activities of the NLHEP, this web site also provides some very good basic information on COPD. Dr. Petty and Louise Nett co-authored a book, Enjoying Life With Chronic Obstructive Pulmonary Disease which is still a very useful one-book reference on our affliction.
    HealthLine
    Healthline provides a very comprehensive overview of COPD as a critical starting point for individuals and/or their loved ones.
    LungFoundation Australia
    Educational Resources - Fact sheets and illustrations written in non-scientific language, to help you learn more about respiratory diseases and better lung health.
    Living Well with COPD
    From the American College of Chest Physicians and the Chest Foundation a printable Patient Workbook - extremely thorough.
    5 Airway Clearance Techniques to Help Clear Mucus From the Lungs
    Includes descriptions of Controlled Coughing, Chest physiotherapy (CPT), Postural Drainage, Expectorants, and Mucolytics.

    Drug & Pharmaceutical Links
    RxList
    Click on the link above for information on a particular drug.
    (the same information that comes packaged with your drug, only a lot easier to read)
    Use the link below to search for references to particular drugs in articles.

    RxList lists the top 200 meds in alphabetical order, their usage, normal doses, interactions, generic and alternate brand names, prices and ordering information.
    It also has a Drug Interaction Checker which allows you to check a combination of as many drugs as your wish. In addition, it has a link to a doctor and pharmacist online.

    Search RxList for ARTICLES relating to input drug

    RxList
       
    GoodRx
    Besides showing you the least expensive places to fill your prescriptions, they have good information on the drugs, and pictures of the form you might get the prescription filled in.
    Drug Interaction Tool - University of Maryland
    Enter two or more drugs; the results will tell you whether the two drugs can have harmful interactions. It will also tell you whether they have duplicate ingredients.
    You can enter one drug and check for any known drug, food, alcohol, or tobacco interactions.
    This tool also contains information on herbs.
    HealthLine - Drug Search
    Not only a drug search, but other helpful tools; Drug interaction checker, Pill identifier, and side-by-side drug comparison.
    National Jewish - COPD Medications
    A good list of types and the actual drugs that might be prescribed for you.
    Cleveland Clinic - COPD Medication Guidelines
    More detailed information of types of medications and why each type might be prescribed.

    The Way To Save On Your Prescription Drugs: Speak Up - from Consumer Reports.
    Also see Consumer Reports - Drug Prices

    Equipment Related Links - including oxygen
    the Doser
    A counter that is mounted on a Metered Dose Inhaler (MDI) to keep track of inhaler use. Electronically displays doses per day and doses per month for monitoring prescribed usage, and provides a way to know when an inhaler is empty.
    The Breather
    The Breather was invented by a pulmonary rehabilitation therapist as a device to help people do pursed lip breathing properly and to strengthen both inhaling and exhaling. The Breather has FDA approval for its intended use but no prescription is required.
    The Pros and Cons of Pulse Oximetry
    Pulse Oximetry Monitoring in Patients With COPD - Pulse oximetry is a non-invasive method of determining the oxygen level (SaO2) in the blood. Normal oxygen saturation levels range between 95% to 100%. Oxygen saturation levels in COPD are typically lower.
    Techniques to Bring Up Mucus
    From Nationa Jewish Health - References devices such as the Acapella or Flutter Valve, The Vest and the Smart Vest that can be used to help bring up mucus.
    Getting Started with Home Oxygen
    Booklet developed by Lung Foundation Australia as a resource for those who have recently been prescribed home oxygen therapy and includes how home oxygen therapy works, the equipment that is used, practical tips others have found helpful and the answers to some commonly asked questions.
    Living with COPD
    Written by an oxygen user, this web site provides information concerning several subjects concerning COPD. It is particularly interesting to those interested in the HELiOS Oxygen system.
    Inogen Oxygen Concentrators
    Their mission statement: "Inogen is innovative oxygen. We are committed to increasing the freedom and independence of oxygen therapy patients through innovative products and services."
    They also have helpful educational information on their Blog.
    Respironics
    Monitoring Systems
    UltraHealth
    An oxygen equipment company.
    Lincare
    Lincare is a provider for oxygen therapy. This is a nice site, with useful information for COPD patients.
    Liberty Medical
    Manufactures concentrators and converters that can be used in automobiles or Recreational Vehicles. They also manufacture emergency oxygen supply systems and hand held oximeters. Well worth checking into if you need a mobile concentrator for travel or additional mobility.

    Benefits - identify benefits to which you might be enititled
    Centers for Medicare and Medicaid Services
    The Centers for Medicare & Medicaid Services (CMS) is a Federal agency within the U.S. Department of Health and Human Services that administers Medicare, Medicaid and the State Children's Health Insurance Program (SCHIP). This site is very detailed and provides search engines for researching the specific topic in which you may be interested.
    Center for Medicare Advocacy, Inc.
    The Center for Medicare Advocacy, Inc. is a private, non-profit organization which provides education, advocacy, and legal assistance to help elders and people with disabilities obtain necessary healthcare. We focus on the needs of Medicare beneficiaries, people with chronicyou might ber conditions, and those in need of long-term care. The organization is involved in education, training and litigation activities of importance to Medicare beneficiaries nationwide. The service is free in Connecticut and for a fee for others.
    Benefits.gov
    The official benefits website of the U.S. government.
    Benefits Checkup
    BenefitsCheckUp is free service of the National Council on Aging (NCOA), a nonprofit service and advocacy organization in Washington, DC. Many adults over 55 need help paying for prescription drugs, health care, utilities, and other basic needs. There are over 2,000 federal, state and private benefits programs available to help. But many people don't know these programs exist or how they can apply.
    Tricare Military Health Plan
    This is a very well organized and informative site for military retirees and their dependents. It has resources for locating Primary Care Providers in your local area. Benefits and entitlements under the tricare health care system and outlines the procedures used for checking and submitting claims.
    Veterans Administration (VA) Health Care System
    This site has a wealth of information on veterans entitlements, including educational benefits, assistance in purchasing a home, locations of veterans hospitals, applying for disability benefits and reduced costs for medication. All veterans should review this site you may be surprised at your entitlements.
    CanadaBenefits.gc.ca - Connecting you to all Canadian benefits
    Use the Benefits Finder for a customized list of federal, provincial and territorial programs and services.

    Tests - descriptions and information on tests and procedures which you may encounter
    Pulmonary tests
    Short descriptions of Pumonary tests from Johns Hopkins.
    Spirometry
    Fairly short but clear descrption of Spirometry (UK)
    Pulmonary Function Tests
    Pulmonary function tests from John Hopkins.
    Guidelines for Six-Minute Walk Test
    From the American Thoracic Society; provides good description of 6MWT (Six-Minute Walk Test).
  • Member Web Sites:

    Many of our members and subscribers have developed web sites which have the primary purpose of providing information which is of value to the quality of life of those of with this affliction. Some of these sites include the human story of how COPD has affected their lives or how they cope with the disease. Others are more specific in their approach, representing lay viewpoints concerning specific subjects which affect our well being such as exercise and diet. Others have absolutely nothing to do with COPD or related health issues.

    Please keep in mind that all websites listed are owned and managed by individual members. COPD-Support, Inc has no control over the content presented at these websites, nor do we judge the accuracy of any information presented. As always, if anything pertains to your health, please consult your own medical team for your own personal medical needs.


  •  box to see links...(uncheck to show less)
    Member Links
    New COPD Members' Photos
    Bunny's photo album on Fotki, of members who have submitted their photos after 2013.
    Click on link above, and when you arrive on the web page, click on "Roll" or "Slideshow" to scroll through the pictures.

     


    * Thanks for doing this Bunny!
    Let's Get Fit with Margo
    Let's Get Fit started in 2000. COPD-Support member Margo Colmore was fearfully attending rehab. Her friend Camille Anderson, who had no access to rehab, asked Margo to pass on what she was learning. Struggling to maintain a regular exercise regimen, Camille and Margo decided to email each other daily to report on what they'd done that day and to help each other stay on track. Their experiment was a success, and it was the beginning of our Let's Get Fit program.
    Living with COPD
    Bill Powell started his web site several years ago but did not change the theme to Living With COPD until July 1998. The site is a bit whimsical and focuses on the human side of COPD as well as advocating measures to improve the quality of life. The site does take a serious approach to ensuring that readers understand that just because you may have COPD, that does not mean you have been given an immediate death sentence. Then through comment, illustration, humor, and "papapoo ponders" (Bill's grandchildren called him papapoo.), provides the base of information on our affliction to guide the reader to more detailed and medically specific information from other sources.
    Lung Resources Home
    Dave Mabo provides information on medical tests that they do for transplant, LVRS and Pulmonary Evaluation. Tools to help you survive your lung disease.
    COPD Support - COPD takes your breath away
    Michael McGloin (Ireland) built a personal/COPD support website to help patients and families understand and cope with this debilitating disease.
    COPD and so much more
    Karen Bastille's site is a continuing "work in progress" as she goes about the business of living her life while learning to live with COPD. She includes Carolyn-MI's collection of prime COPD messages frequently posted for newcomers. She keeps adding personal stories from people with COPD and good COPD web sites.
    Olivija's Place
    Olivija passed away in 2004. Her web site is being maintained in her honor. Unfortunately there are several technical problems now and dropped links. Nevertheless, she put in a ton of work initially and you can still find good information if you dig around. Olivija was a great resource to our group for many years.
    Kaysok's Photo Album
    This a photo album of chatters who come to our copd-support chats. The photo album contains the story of how Kay and her husband, Bass, met in the Chat room. Kaysok is their dog.